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Chapter 1. Death: Resolving Biomedical Ethics Through Constitutional Law


A. Quinlan: Removing the Respirator    + View Resources


B. Cruzan: Discontinuing Nutrition and Hydration    + View Resources

Learn About Living Wills and Durable Powers of Attorney

MODPA Form

DPAL Will Page 21

DPA Will Information

Learn about POLST

California POLST

Has your state adopted POLST?

How would you resolve a Terry Schiavo situation in your state?

Get started with the National Hospice and Palliative Care Association or

Compassion and Choices.

C. Glucksberg: Assistance in Suicide    + View Resources


D. Looking Ahead: Can We Be Sure About Brain Death and Vegetative States?    + View Resources

1. BRAIN DEATH

2. BRAIN DEATH AND PATIENT AUTONOMY

Watch the videos of Jani McMath.





Erick Munoz Sworn Affidavit

3. VEGETATIVE STATES AND MINIMAL CONSCIOUSNESS

Judy Illes has edited a new book on neuroethics, called Neuroethics: Anticipating the Future. The book extends the authors' earlier work and identifies what the future of neuroethics will look like, especially as technology develops. See Neuroethics.



Chapter 2. Informed Consent: Legal Protection of Patients and Human Subjects


A. The Historical Record    + View Resources

1. THE STANDARD FOR INFORMED CONSENT

Jerry Canterbury dies at age 78. Read about his life and case at Jerry Canterbury's Death.

2. STERILIZATION

Watch the following video. Buck v. Bell is mentioned at 4:30-6:04.



Compare your sterilization bill to California's:

Senate Bill No. 1135


3. RACISM AND RESEARCH

Should the US government apologize to Guatemala?


B. Setting Standards for Research With Human Subjects    + View Resources


C. Looking Ahead: Improving Consent In New Circumstances    + View Resources

1. CAN TECHNOLOGY IMPROVE INFORMED CONSENT?

Watch the following video on informed consent prepared by the National Institutes of Mental Health (NIMH):



Watch these four videos about informed consent:










2. APOMEDIATED CLINICAL TRIALS

Compare www.patientslikeme.com (makes money by selling patient information to companies that are developing products) with http://diygenomics.net (brings tools and libraries together for small scale genomics labs for the process of sequence assembly), https://www.inspire.com (receives funding by providing research for life science companies); and http://www.armyofwomen.org (focusing on breast cancer receives funds from grants and donations).

Would you know how to use this website to contact research subjects? What about this one?

3. INCIDENTAL FINDINGS

IRB Primer on Incidental Findings

4. COMPASSION IN PUBLIC HEALTH EMERGENCIES




Chapter 3. Reproductive Privacy and Parenthood


A. Abortion Legislation from Partial Birth to Fetal Pain    + View Resources

1. PARTIAL BIRTH ABORTION

WebMD on abortion

Be sure to read about D&E

Listen to the oral argument in Carhart II.

2. FETAL PAIN

3. INFORMED CONSENT

Senator Patrick was the main sponsor of the sonogram bill. Read about and listen to his position at this website and this website.

Then listen to this story about Carolyn Jones's abortion and read her linked story from the Texas Observer.

HB15 Sonogram Form

Visit this website, for an example of how Michigan requires women to read forms on their website, then print out a confirmation page that they read and understood the issues, and bring it to their abortion appointment.

Read this overview of state ultrasound laws.

VirginiaUltrasound

4. ADMITTING PRIVILEGES AND MEDICATION ABORTIONS

Learn About Hospital Admitting Privileges.

What you should know about medical staff bylaws.

Summit Health Care's Medical Bylaws

Stanford Hospital's Medical Staff Bylaws

Use these resources to help with your cert. petition.

How to Qualify as an Ambulatory Surgery Center in Texas

Rules for Filing a Petition for Certiorari in the Supreme Court

Learn about Mifeprex.

FDA Approved Uses of Mifeprex

Read the agreement patients sign when they use Mifeprex.

Read the Supreme Court's Texas abortion case, Whole Woman's Health v. Hellerstedt.

B. Reproduction and Parenthood    + View Resources

1. SURROGATE MOTHERHOOD

Read these materials and watch these videos in order to understand how IVF works:

MedlinePlus describes IVF.

Watch the National Geographic video on IVF.

WebMD describes the types of surrogate motherhood.

Use the following two websites to get an overview of the different laws regulating surrogacy across the United States:

Creative Family Connections
Select Surrogate

Visit SelectSurrogate and ConceiveAbilities so you can understand how the business of surrogacy works:

SelectSurrogate
ConceiveAbilities


New Nevada Surrogate Law

Have these websites described the Nevada law accurately?

Surrogacy Source Blog
Conceiveabilities

What do you think of the way surrogacy is handled in India?

Read about surrogacy in India.

Should IVG (in vitro gametogenesis) be used for human reproduction?

2. ADOPTIVE PARENTS AND FORGOTTEN FATHERS

C. Looking Ahead: Designer Parenthood    + View Resources

1. THREE-WAY PARENTHOOD-HOW MANY PARENTS?

The three-way parent mitochondrial process is described here.

2. FORCED PARENTHOOD?

California Senate Bill 115


3. DELAYED PARENTHOOD?

Read about egg freezing here.

Watch the egg freezing process:



This woman decided to freeze her eggs:




4. SAVIOR SIBLINGS?

Learn about PGD.


5. INFANTICIDE

Take a look at Nadia Sawicki's blog post, about birth plans, Birth Plans As Advanced Directives.



Chapter 4. Justice: How Should Health Care and Organs Be Distributed?


A. Right to Health Care    + View Resources


B. Organ Transplants    + View Resources



1. The Ban on Compensation

Read the blogs:
Cohen Flynn Blog
Greely Flynn 1
Capron Reply
Greely Flynn 2
Meyer Flynn Blog
Greely Flynn 3
Flynn Proposed Rulemaking
WSJ Marrow

2. The Special Case of Kidneys: Reason to Start a Market for Organs?

Would you be a kidney donor?
LivingK idney Donor
Donor Reg
Flesh Net Worth

a. Altruistic NEAD Chains

b. Let the Market Decide

c. Encouraging Donation

d. Rethinking Who Should Receive Kidneys



Read the latest reports to find out how the new KAS is working.

C. Looking Ahead: More Markets for More Body Parts    + View Resources

1. Ovaries and Uteruses

Is a head transplant possible?

2. The Foreign Market for Organs

3. Reverse Transplant Tourism

4. Mind Over Matter: Organ Donation by the Mentally Incompetent



Chapter 5. Conscience: An Exercise of Paternalism or Autonomy?


A. Whose Conscience Counts?    + View Resources

1. Conscience Clauses

Learn the details of state conscience clauses that affect reproductive health care.

Compare How Faith and Science Analyze Emergency Contraception:



How Emergency Contraception Works.

Use Illinois' laws to decide the Morr-Fitz case.

The Illinois Health Care Right of Conscience Act

Illinois' Religious Freedom Restoration Act

The Merger Exercise

Pick a classmate or friend who will oppose you in negotiations between the two hospital systems, Catholic and Secular. The New England Journal of Medicine has some guidelines for you about how to achieve "the good merger."

Lawyer for Catholic Hospital

Your client is very concerned about the immorality of sterilization. Read this article to understand your client's concerns. The Catholic ERDs are available here.

Lawyer for Secular Hospital

Your hospital traditionally provides sterilization consistent with this information from HHS.
This is your client. Can you find any information supporting your side here?

What will your new hospital look like?

2. The Religious Freedom Restoration Act (RFRA) and Corporate Conscience

Read the FDA's description of birth control.

B. Stem Cells    + View Resources


C. Looking Ahead: Will New Technology Raise New Questions of Conscience?    + View Resources

1. A Health Care System Based on Health

2. Stem Cell Breakthroughs




3. Umbilical Cord Blood Banking

Does this document give informed consent?

How much should you pay for cord blood banking?



Chapter 6. Property: The Balance Between Research, Profits, and Patients


A. Patents    + View Resources

Review the basics of patent law.

Understand the Science Behind the Case

Read this introduction to DNA.

Next, learn the relationship of genes and chromosomes to DNA.

Scientists study genes in order to determine how diseases are caused. By means of DNA sequencing, Myriad identified two genes, BRCA1 and BRCA2, that cause breast and ovarian cancer. To visualize what the genes look like, go here.

The original method of DNA sequencing—called the Sanger Method—is described in video form here and in text here.

Practice Genetic Sequencing.

The following image describes the process by which DNA is transformed into cDNA.



Who Should Seek Genetic Testing?



Learn from the HGP which diseases are associated with which chromosomes.

Is BCM's genetic testing informed consent form adequate?


The Oral Argument in Myriad (Click play button on this link to hear audio and read live scrolling transcript)

Can Stem Cells be Patented?

Stem Cell Patent. You may also read this patent at the USPO website.

Read the Brustle press release.

Then read the ISCC press release. How did the court distinguish Brustle?

ISCC's patent in the United States.

B. Profits    + View Resources


C. Looking Ahead: More Financial Opportunities    + View Resources




Chapter 7. The New Frontier: Neuroethics


A. Criminal Law Leads the Way    + View Resources


B. Courtroom Issues    + View Resources

Selective Attention Test


Whodunnit?


The Bomber on the Roof Part I


The Bomber on the Roof Part II


The DRM Paradigm Test
Ask someone to read a list of words to you. Then write down as many words as you can remember.

How is Your Memory for Faces?

Learn how DNA testing works:


New Jersey Jury Instruction

New Jersey Court Rule






C. Looking Ahead: Neuroscience's Role in All Areas of the Law    + View Resources

1. Measuring Pain

Read a summary of Dr. Wager's research on pain.

2. Mind Reading

3. A New You

4. Death or Life?

Listen to the Reaching the Unreachable segment of the podcast here.

Read Professor Shen on legislative developments in neuroscience.

Read Adrian Owen's new book describing his career in brain research, at Into the Gray Zone.






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